The Faces of CHD Pinterest Awareness Challenge FAQs

Update:  Are you here to find out how to participate in The Faces of CHD Pinterest Awareness Challenge?  Please click HERE to learn more, then click HERE to find out how to participate.

In the last few days, the Pinterest Awareness Challenge has really taken off!  Our board, The Faces of CHD, has reached over 700 followers and there are more than 75 brave faces representing the CHD community.  Each time one of the pins on the board is repinned, it represents another group of people who have become more aware of the special challenges, worries, and triumphs that are part of living life with a congenital heart defect.

As with anything that grows, we’ve experienced a few growing pains as the board has increased in popularity.  I’d like to respond to a few frequently asked questions.

Q:  What is Pinterest?

A:  Pinterest is a virtual bulletin board, where people can “pin” pictures with captions to be viewed and shared by others.   Here’s how Pinterest’s “About” page describes how it works:

Pinterest lets you organize and share all the beautiful things you find on the web. People use pinboards to plan their weddings, decorate their homes, and organize their favorite recipes.

Best of all, you can browse pinboards created by other people. Browsing pinboards is a fun way to discover new things and get inspiration from people who share your interests.

 

Q:  When I click on the Pinterest links, it tells me I need to be a member to view it.  Why?

A:  Pinterest requires a membership, much like Facebook and other social media.  It is free, but membership is currently by invitation only.  You can request an invitation from Pinterest, but it will take a few weeks.  Or, you can request an invitation from an existing member, which will be faster (emails for the board’s editors are listed at the end of this post).

Q:  I want to have myself or my child included on The Faces of CHD Pinterest Board.  How do I do that?

A:  You can be included on The Faces of CHD Pinterest Board whether or not you have a Pinterest account.  Click HERE to find out how to submit your story.

Q:  I’m a Pinterest member trying to pin my child’s picture to the board, but it won’t let me.  What am I doing wrong?

A:  Nothing!  Boards are designed so that only those who have permission to do so can pin to the board.  Currently, Becca, Stefanie, and myself are the only people who can add pins to the board.  This is so that we can monitor the content and make sure that the good intentions of the board aren’t ruined by unscrupulous pinners.  If you have a Pinterest account, you are welcome to create a pin of your child to place on one of your own boards.  Email us the URL of your pin, and we will repin it to our board.

Q:  There are a lot of heart families I know from our local support group who should have their faces on this board.  Can I send you their blogs and get them pinned?

A:  No.  We will only accept pictures, pins, and descriptions from the actual heart parents or adult survivor.  Please respect the privacy of individuals.  Not everyone is comfortable having their picture or personal information available online.  By all means tell the other heart families you know about our effort, but let them decide whether or not they would like to participate.

Q:  What does it mean when someone “repins” my picture?

A:  Pinterest has an excellent help page that answers questions like this for members and non-members alike.  For questions about Pinterest lingo, I recommend you stop by and read through their handy tips.

Q:  Can anyone view my child’s pin?

A:  Pinterest is a members-only sharing system.  Only someone with a Pinterest membership can view the actual pin.  However, like anything that is posted online, we cannot guarantee how other Pinterest members will use this privilege.  If you are uncomfortable with having your child’s picture and story online, then we recommend that you choose not to participate in The Faces of CHD Pinterest Awareness Challenge.

Q:  I am the parent of a child who was born with a CHD, but my child died.  Can my child be included on the board?

A:  ABSOLUTELY!  As much as we all love to read about the miracle children, one of the unfortunate realities of CHDs is that not everyone survives.  Some defects are incompatible with life.  Many defects can be repaired, but we are all aware of the risks that come with those repairs.  It is important that we include those who did not survive–like my own daughter, Lily–right along with those who did–like my eight year old daughter, Sariah.

Thank you so, so much for your interest in The Faces of CHD Pinterest Awareness Challenge!  You can read more about the Challenge here.  Contact information for the board editors is listed below.  Please get in touch if you have any other questions.

Ruth: triptoholland {at} gmail {dot} com
Stefenie: jacks_rswl {at} mepotelco {dot} net
Becca: becca1612 {at} hotmail {dot} com

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