Due to ongoing medical conditions, our family spends a fair share of time traveling to and from doctors’ offices and hospitals. Unfortunately, we have also experienced grief due to these medical conditions. Dealing with difficult diagnoses, loss, and grief can be so difficult. Here are links to some of the organizations and resources that have helped me find my way.
Little Hearts, Inc.
Make a Wish Foundation
Perinatal Hospice
Waiting with Gabriel: a story of cherishing a baby’s brief life
Now I Lay Me Down to Sleep: Infant Bereavement Photography
Ninety-nine Balloons: Elliott’s story
CHD Babies
Living for Eden
United Mitochondrial Disease Foundation
James Whitcomb Riley Hospital for Children
The Church of Jesus Christ of Latter-day Saints (the Mormons)
