Hope and Heartbreak

I continue to be thrilled and astonished by the growth of The Faces of CHD.

Click here to learn more about The Faces of CHD.

I try to read every pin that goes onto the board.  It has made for a very emotional few days for me.  The notes from parents and adult survivors that accompany each pin submission are not only enjoyable to read, but often very humbling.  It is a privilege to meet so many who have fought so courageously.

Some of the letters that I read are truly heartbreaking, as I learn of a family’s recent loss.  Losing a child of my own doesn’t make it any easier to hear about the death of another child–knowing the pain of that loss makes it all the more poignant to realize what their family might feeling.  Early on, one mother submitted the story of her child’s brief life with this note, “Is it all right for [my child] to have a pin, even though he’s not a survivor?”

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Healthy Superkid Update

I have not found much time for blogging this last week, and I’m afraid that’s going to be the case until sometime next week.  I somehow think I’m going to have all this extra time when school starts, but I think the reality is that I spend the morning recovering from getting everyone out the door, and the afternoon gearing up for everyone coming back through the door.  Once they arrive, then the action and noise involved makes up tenfold for what wasn’t there during the day.  School totally wears Hunter the Dog and I out, I’ll tell you that much.

Anywho, it’s late, and I’ve got lots to do tomorrow, so this has to be quick.  I just wanted to share the good news that Superkid’s cardiology appointment last week went really, really well.  It was her first cardiology visit in over a year, and her heart looked so good that they told us not to come back again for another year!  That, my friends, is quite a record for us. [Read more...]