Adventures with Superkid

Here’s the report on yesterday’s trip to the children’s hospital:  Superkid was a superstar!

If I haven’t told you before, you need to know that Superkid considers all trips to our children’s hospital–for any reason–to be primarily a social outing.  Any procedure or examination that the trip entails is secondary to the opportunities for social networking and the gathering of prizes, as far as Superkid is concerned.  A true performance artist, Superkid also feels that every person encountered at the hospital is a fresh audience ready to be delighted with her medical history, family history, favorite songs, new vocabularly words, and dance moves.

I don’t know where she gets that. [Read more...]

A Visit from The Nutmegger

I’m delighted to welcome my dear friend Erica (a.k.a. Nutmegger)to Holland, today!  She took me up on my plea for blog posts instead of casseroles.  Thank you, Erica!  I met Erica way back when we were both learning how to be wives and mothers.  She was (and continues to be) a wonderful example to me of a woman who never stops learning.  A talented violinist, Erica left behind a academic and performing career to focus on a role that doesn’t necessarily earn her the kind of applause she once received.  She is now a mother of five beautiful children.  

One of my many memories of Erica is of driving up at her house in a panic, handing her my two toddlers and trying to explain with a shaking voice that baby Superkid was in heart failure and I had to get to the hospital with her NOW.  Erica hugged me, told me to drive as fast as I could, and said not to worry about Endeavor and Justone–she’d take care of them.  I believe that run to the hospital turned into an ambulance ride to an out-of-state hospital, and I didn’t see Endeavor and Justone for a week.  They were mothered in my absence by Erica and other dear, sweet friends until I could bring Superkid home from the hospital.  Thank you, Erica, for being that kind of friend!

Erica is about to reveal what the contents of a woman’s purse say about her….take it away, Erica! [Read more...]

The Cure for the Uncommon Nosebleed

This is a totally gross topic.  My apologies.  But the reality at our house is that we are way, way too familiar with bleeding through the nose, thanks to Superkid.

Superkid tends to have a lot of nosebleeds.  Part of this is due to the fact that she has to take a blood-thinning medication to protect her artificial heart valve from blood clots.  And part of it is due to the fact that she has a small artery a little too close to the surface of her left nostril.  (For which there isn’t a simple fix, due to Superkid’s other medical conditions.)

The combination isn’t exactly pretty–especially when her medication is at therapeutic levels.  (Read: when her blood is as thin as her cardiologists want it to be.)  Believe you me, I have the stained sheets, towels, t-shirts, and carpet to prove that.  We have seen some pretty dreadful nosebleeds.  One of Superkid’s worst lasted for 3+ hours, and dripped like a faucet the entire time.  Naturally, that one occurred at 10 o’clock at night while Bionic Man was out of town on business, and involved a late-night trek to the children’s hospital ER with Superkid, Lily, and Lily’s oxygen tank in tow.  The nosebleed stopped as soon as we walked into the ER.  I am not kidding.

And, up until recently, that was the best cure for nosebleeds we knew.  Seriously, we’ve had three nosebleeds worthy of trips to the ER, and all of them stopped upon entry. Kind of an expensive and time-consuming cure, don’t you think? [Read more...]

Truth Stranger than Fiction

In the early hours of this morning, Bionic Man nudged me awake and told me, “I just had the weirdest dream.”  Then he told me all about it.  I agreed.  It was weird.

Only Bionic Man can come close to outdreaming me when it comes to weird dreams.  It’s one of the reasons I married him.  But this morning, I was not about to be outdreamed.

“I had a really weird dream, too,” I confessed.   [Read more...]

Healthy Superkid Update

I have not found much time for blogging this last week, and I’m afraid that’s going to be the case until sometime next week.  I somehow think I’m going to have all this extra time when school starts, but I think the reality is that I spend the morning recovering from getting everyone out the door, and the afternoon gearing up for everyone coming back through the door.  Once they arrive, then the action and noise involved makes up tenfold for what wasn’t there during the day.  School totally wears Hunter the Dog and I out, I’ll tell you that much.

Anywho, it’s late, and I’ve got lots to do tomorrow, so this has to be quick.  I just wanted to share the good news that Superkid’s cardiology appointment last week went really, really well.  It was her first cardiology visit in over a year, and her heart looked so good that they told us not to come back again for another year!  That, my friends, is quite a record for us. [Read more...]